our story
our story
INSPIRED BY LOVE
The Lili Claire Foundation was born from Keith Resnick and Leslie Litt’s dream 
to honor their infant daughter Lili Claire, by helping to improve the lives of children living with neurogenetic birth conditions and creating services to support their families and caregivers.
​Lili was born on October 18th, 1997. Soon after her birth, Keith & Leslie learned that she had been born with a neurogenetic birth condition called Williams Syndrome, which would result in life-long cognitive disabilities and medical challenges. Tragically, Lili passed away after undergoing an 18-hour open-heart surgery to correct a severe heart condition common to Williams Syndrome.
Although she was only here for a short time, Lili inspired her parents to create the Lili Claire Foundation to help other children living with neurogenetic conditions. Because of the support of people like you, the Lili Claire Foundation can offer programs and services to children living with neurogenetic birth conditions and provide hope and support for the families who love them.
DID YOU KNOW?
families helped at
Lili Claire Foundation
clinics 1997-present
million
raised to fund programs,
services and research
1997-present
%
of each dollar raised
1997-present went directly
to programs
A RICH HISTORY
Founded in 1997, the Lili Claire Foundation established family resource centers at UCLA, Vanderbilt, Meharry Medical College and the University of Nevada School of Medicine to provide a unique and comprehensive blend of support services. Through community outreach, the centers were able to provide clinical expertise to ensure that every child living with a neurogenetic condition received the best and most compassionate care available. Never wanting a family to struggle with massive clinical bills, all programs and services were offered free of charge. The foundation hosted several star-studded events each year to support these clinics.
In 2010, when the Affordable Care Act was signed into law, it eliminated the pre-existing conditions barrier, making free clinics less necessary. Over the next decade, the Lili Claire Foundation completed each university contract, and then began to imagine the next chapter for the foundation’s programs and services.
THE VISION TODAY
Keith and Leslie had always wanted to create programs that Lili would have needed at different phases in her life. With that in mind, the foundation began shifting its focus to behavior, socialization, coping mechanisms, reading instruction, vocational training and other essential life skills. Today the Lili Claire Foundation works alongside teachers, social workers and therapists to provide education, support and resources.
SOME OF OUR STORIES
